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Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about 'hypermobile Ehlers-Danlos syndrome' and 'hypermobility spectrum disorder'. Edition 2, published In January 2024, also includes the recently defined 2023 Diagnostic Criteria for Paediatric Joint Hypermobility.


The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more. 


From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management - if you ever wished that you could find all of the information you need, together, in one place...Look no further!






The content has been reviewed in its entirety by Dr Alan Hakim, with various sections already having been read by experts such as Prof. Suranjith Seneviratne, Dr Pradeep Chopra, Prof. Shea Palmer and Dr Leslie Kavi.




‘You must publish this book Claire and as soon as possible. I will be recommending your book to my patients - very well done.’  - Prof. Seneviratne - Director of the Centre for Mast Cell Disorders, and Consultant in Clinical Immunology and allergy, UCL


‘I commend this terrific book to anyone wishing to learn more about these conditions... This is very much a book for patients, carers, and health and social care colleagues alike.’
Dr Alan Hakim - Consultant Rheumatologist, and Chief Medical Advisor to the Hypermobility Syndromes Association


‘Wow, incredibly helpful. I was diagnosed years ago and I still didn't know about at least half of this. It explains SO much!’
Patient reviewer


‘Congratulations on writing a very comprehensive overview.’
Dr Lesley Kavi - Managing Trustee at PoTS UK


‘I recently purchased a copy of your new book 'Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder' and am delighted with it. The information is life-changing for me, helping me to a diagnosis of a health condition I have suffered from for years.’
Patient reviewer


‘Marvellous work all round!! The book is excellent. Very informative and very well researched. I love it! An enormous piece and extremely well written... I will share it with my colleagues.’
Dr Jane Simmonds - Co leader of the physiotherapy team in hypermobility related conditions at Hospital of St John and St Elizabeth, and post graduate physiotherapy educator and researcher at University College London Great Ormond Street Institute of Child Health


‘I received my book and was beyond surprised at the amount of information it provides! This is a HUGE resource to the EDS community and I am so thankful to [the author] for committing to such a large project for our community! I have recommended it to my specialists and physicians, as well as my local support group of over 100 active members.’ 
EDS Support Group, USA


‘THANK YOU for the lovely book -- I just received it today when I went to my office. It was so nice to see it waiting for me on my desk, and I was so excited to leaf through it. ...what an important book and contribution to patients and medical professionals. Thank you again and again for writing it...’
Patient reviewer


'[The Royal College of General Practitioners (RCGP) and I would] like to ask if we might be able to use some extracts from your work for the Toolkit. ...The RCGP is keen to have everything it produces as strongly evidence-based as possible, and clearly your work is exactly that...'

Dr Emma Reinhold, enquiring on behalf of Royal College of General Practitioners


‘I have just received your book. I would like to sincerely compliment you on a job well done. I can imagine the commitment and effort that has gone into writing it. This book was badly needed and is excellently researched and beautifully written. I will certainly recommend your book to all my patients with hEDS and HSD and medical professionals who treat them.' 
Dr Deepak Sharan, Medical Director, RECOUP Neuromusculoskeletal Rehabilitation Centre, India


‘Received my copy and I am in shock at how well written and to the point this book is. It’s like my autobiography of medical issues past and present, and medical care and lack of care.’
Purchaser feedback


‘Just a note to say a HUGE thank you for sending a copy of your new book. It’s superb! Very much appreciated. ...I will take time to thoroughly explore it over the next few weeks and will share the link with fellow colleagues and patients.’
Patricia McLaughlin, Snr Clinical Nurse Specialist, Western General Hospital, Edinburgh


‘Best book I have read on EDS (and read lots!!). So glad that MCAD and PoTS are in there too. It was like reading a book about my son.’
Purchaser feedback


‘Thank you for writing such an informative book with explanation, reference info and things clearly explained. Thank you so much, I will be taking this with me to all mine and my daughter’s appointments.’
Purchaser feedback


‘Kudos on a fabulously valuable endeavor.  [Your book] is unbelievably thorough, detailed, and up to date...’ ‘...[It] is really going to educate and enlighten a lot of people. Now if only we could get medical schools to use it as a text for a course!’

Dr Alan Pocinki FACP. Clinician working with patients with EDS and related conditions


‘It's an utterly fantastic book and I would tell anyone, or a member of their family, who suffers to buy it!’
Purchaser feedback


‘Could not recommend this book more! Extremely well written and extensive about all parts of hEDS and it's comorbidities.’ 

Purchaser feedback


‘This book is a ‘must have’ for anyone affected by HSD or hEDS (and the health care professionals caring for them).  It clearly explains all the different aspects of these complex disorders, and also explains how each patient, and those supporting them, can best contribute towards treatment and management.’ 

Patient Reviewer.


'This phenomenal book covers symptomology, diagnosis, and management extensively. It’s written in a reference manual format but in a friendly and easily accessible style.’  ‘...It’s a book that patients and doctors alike should have on their bookshelves.'   

Dr Emily Casanova - Doctor of Anatomy Science and Neurobiology


Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disord

  • Note for NHS and Private Practice Customers:

    We are able to supply NHS Foundation Trusts and Private Practice via Purchase Order - please contact us for more information.

    As part of the GP Toolkit, The Royal College of General Practitioners (RCGP) have recommended this resource for patients and their carers, and as a quality improvement/training/education tool for health care professionals. This toolkit is now hosted by Ehlers-Danlos Support UK.


    Product Details:

    Author: Claire Smith

    ISBN:  978-1-9997300-4-8

    Format: A4. This book has been spiral bound to make it more user friendly for those with hypermobile hands; spiral binding allows an open book to fold back upon itself, or to remain open on a flat surface or in a book stand.

    Language: English

    Publishers: Redcliff-House Publications

    Originally published June 2017 (Edition 1), and updated January 2024 (Edition 2)

    In stock now: Edition 2

    Pages: 188

    Product dimensions: A4 i.e. 30 x 21 cm




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