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Section 1 - Books and other printable materials

Section 2 - Charities and not for profits

Section 3 - Important web pages

Section 4 - Webinars and Live Streaming

Section 5 - List of health care professionals and wellness practitioners

Important note:

Redcliff-House is a small business set up to raise awareness of hypermobility spectrum disorder, hypermobile Ehlers-Danlos syndrome and associated disorders. Run on a part-time basis, and with hypermobility related disorders ourselves, our aim is  to try and fill gaps in information provision, designing awareness raising materials and publishing literature which will benefit patients and healthcare professionals and save charities and organisations duplication of time and resources, whilst raising money for charity at the same time. 


We assume no responsibility or liability for the content of websites linked on our site. Such links should not be interpreted as endorsement by us of those linked websites. We will not be liable for any loss or damage that may arise from your use of them.  


If you have a special interest in hypermobility related disorders; offer a service to those affected by these conditions, and would like to have your details included on this list, please write to us at

Section 1 - Books (listed in alphabetical order):

A Multi-Disciplinary Approach to Managing Ehlers-Danlos (Type III) – Hypermobility Syndrome

by Isobel Knight 2013

Click here


Bending without Breaking - Living with Ehlers-Danlos Syndrome Hypermobility Type

by Isobel Knight, (2nd Edition) Revised 2015

Click here

Hypermobile Ehlers-Danlos Syndrome during pregnancy, birth and beyond’ 
by Pearce G. Reinhold E. and Prezaro
Downloadable PDF (which has had more than 10,000 downloads by midwifery and medical professionals) can be found here:

Hypermobility and Hypermobility Syndrome -

A letter to my patients by Dr Alan Pocinki MD

Click here

Hypermobility, Fibromyalgia and Chronic Pain, 1e

by Hakim, Keer and Grahame, 2010

Published by Churchill Livingstone

Click here

Hypermobility Syndrome: Diagnosis and Management for Physiotherapists 

by Rosemary J. Keer & Rodney Grahame. 

Published by Butterworth Heinemann

Hypermobility Without Tears

by Jeannie Di Bon

Published independently

Click here

Joint Hypermobility Handbook 2010 (2nd edition)

by Dr. Brad Tinkle

Click here

Magnesium and EDS Parts 1 & 2

by Dr Heidi Collins

Click here

Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity

by Afrin, L. MD 2016

Click here

Our Stories of Strength: Living With Ehlers-Danlos Syndrome 

by Reutlinger, Myles, Francomano et al, 

Click here

Pilates Without Tears: The 5-step no pain, no strain strategy to move and feel great

by Jeannie Di Bon, 2016

Click here

Stickman Communications

by Hannah Ensor

Click here

A light hearted view aimed at predominately at children. Titles include:


  • You know you have Hypermobility syndrome / Ehlers-Danlos syndrome when...

  • You know you have Postural Orthostatic Tachycardia syndrome When...

  • You know you have been in hospital too much when...

  • You know you have been pushing it when...

Understanding hypermobile Ehlers-Danlos syndrome, and hypermobility spectrum disorder - previously known as  Ehlers-Danlos syndrome hypermobility type, and joint hypermobility syndrome

by Claire Smith 2017

Click here

(Feedback from medical professionals, about this book can be found here).


Section 2 - Charities and Not For Profits  (listed in alphabetical order):

Ehlers-Danlos Society


A global community of patients, caregivers, health care professionals, and supporters. 'Research is at the centre of what we do, so that one day we will have a cure.' The Society support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population.

A wide range of printable materials including educational leaflets and posters.

Ehlers Danlos Support UK 


A wide range of printable information covering Ehlers-Danlos syndrome

Publications include the following:

  • Pregnancy & Childbirth in Ehlers-Danlos Syndrome

  • Difficulties in School/College for Young People with EDS

  • Learning to be Different (written for 4-7 year olds)

  • EDS Medical Passport

EDS Wellness


A nonprofit organisation providing virtual and in-person patient and continuing medical education, to facilite proper diagnosis for ALL hypermobility disorders and related conditions, and to develop and implement research-based solutions for patients and healthcare providers. 

Sussex EDS


A Sussex wide voluntary community group actively supporting people with EDS/HSD.

The Hypermobility Syndromes Association 


A wide range of printable information covering Ehlers-Danlos syndrome, joint hypermobility syndrome, Marfan syndrome, Osteogenesis imperfecta and Stickler syndrome is available from the Hypermobility Syndromes Association website.

A range of purchasable publications are available from their online shop (visit:

Their range of publications includes:


  • Living well with a heritable disorder of connective tissue

  • An Educator’s Guide to the hypermobile student

  • Have you, or someone you know, been diagnosed with one of the hypermobility syndromes

  • Persistent fatigue and heritable disorders of connective tissue.


Section 3 - Important web pages to visit (listed in alphabetical order):

EDS and Related Disorders Global Registry

To join the 'Ehlers-Danlos Society EDS and Related Disorders Global Registry', and help researchers throughout the world to advance understanding of EDS, HSD, and related symptoms and conditions click here:

General Practitioner (GP) Toolkit

The Royal College of General Practitioners Ehlers-Danlos syndromes (EDS) toolkit, created in partnership with EDS UK, hopes to begin a revolution in the recognition of inherited connective tissue disorders. This practical online guide describes the diagnostic clues which can enable GPs to recognise EDS as well as common comorbidities such as autonomic dysfunction, gastrointestinal dysfunction, mast cell active syndrome etc., The toolkit offers a comprehensive guide to approaching the management of people who have EDS in a primary care setting, as well as indications for onward referral.

Professionals Hypermobility Network (The Kent Model)

The Professionals Hypermobility Network (Kent Model), created in partnership with the Hypermobility Syndromes Association, educates health care professionals (via Masterclasses and online resources) and links hypermobility informed and friendly professionals and volunteers.


Inspire - EDS and related disorders online support community


Section 4 - Webinars and Live Streaming

Webinars from Chronic Pain Partners


Webinars from Ehlers-Danlos Society


Live Streaming HypnOT (with expert Patients Jo Southall (Jo Southall Ocupational Therapy and Kim Claydon (Positive Solution Hypnotherapy)


Screen Shot 2019-09-23 at 19_40_10.png

Section 5 - Health care professionals and wellness practitioners (listed in alphabetical order):

We have compiled a list of health care professionals and wellness practitioners with an interest in, and who are supportive of, hEDS; HEDS, and PoTS. If you would like to have your name included (or removed) please write to us at  Please note that Redcliff-House does not have any financial interest in any of the professionals, clinics or wellness practitioners listed and there are no formal listing criteria, and no warranties, guarantees (express or implied) are made as to the quality of care given or medical advice provided by those in this listing.  In some cases a referral may be required before an appointment can be made. This list will be added to regularly, but is far from  exhaustive.  Additional links to lists available through other websites can be found at the end of this section.

Allergy/Immunology (listed in alphabetical order)

Professor Suranjith Seneviratne DPhil(Oxon), MBBS, MD, MRCP, DPath, MRCPath, FRCP, FRCPath, FCCP

Clinical Immunology, Allergy, Immunogenetics

Clinics in London UK and Colombo Sri Lanka

Alexander technique (listed in alphabetical order):

Julie Barber

Alexander Technique Teacher

Folkestone, Kent, UK

Ann Rodiger

Balance Dance Studio

New York, USA

Laura Tuthall

New York USA 

Breathworks - diaphragmitic breathing to ease chronic pain (listed in alphabetical order)


Elin Morgan

Breathworks Teacher

Birmingham/Worcester/West Midlands (UK)

Chiropractors (listed in alphabetical order)

Sari Botros

Rock Chiropractic Health Centre

Exeter (UK)

Elisabeth Davidson


Aberdeenshire (UK)

Lee Harvey

Weston Chiropractic Clinic (UK)

Marc Martineau

Exmouth Chiropractic Clinic

Exmouth (UK)

Consultants and Consultant Surgeons (listed in alphabetical order):

Dr Dianne Bruce

Consultant Cardiologist

BMI The Harbour Hospital

Bournemouth, UK

Jonathan Eldridge - Consultant Knee Surgeon 

Spire Hospital, Bristol

Dr Chris Morley

Consultant Cardiologist - Syncope, PoTS (including patient with HSD/hEDS) From aged 16

Yorkshire, UK

Mr Ian Nelson

Specialty: Trauma & Orthopaedics

Clinical interest: Spine surgery (inc., scoliosis)

Bristol, UK

Mr John Seaton

Consultant Gynaecologist - 

Menstrual disorders (menorrhagia); Urodynamics; Urogynaecology; Prolapse surgery; Colposcopy (examination of cervix and vagina)

Spire Hospital

Hythe, UK

Dr Graham Stuart

Cardiologist (Special interest in Marfan syndrome and EDS) 

Spire Hospital Bristol , UK


Please note: Consultant Rheumatologists are listed under Rheumatology (please scroll down

Dentistry (listed in alphabetical order):

The Dental Barn - Based in East Sussex (UK), the team at the Dental Barn say: 'The best way that EDS patients are treated is with understanding, empathy and good communication with patients, families and dental professionals. If you would like a free coffee and a chat to talk about how we can help you with your EDS and dental treatment just call us on 01323 325397.'


JNT Dental - Based in Richmond Virginia (USA), the team at JNT Dental say: 'We have a large patient base that have hypermobility disorders'. From craniofacial pain, temporomandibular joint disorders (TMD) and sleep apnea management to top-notch dental care, our team at JNT Dental provides you with access to some of the most cutting-edge diagnostic tools and treatment options available today.

Mitakides -  Based in Dayton, Ohio, the practice say 'Dr. Mitakides is dedicated to complete care for his patients, including treatment of craniofacial pain and TMJ disorder in the Ehlers-Danlos Syndrome (EDS) patient. He is on the international board of The American Academy of Craniofacial Pain, and serves on the Medical Board of the international Ehlers-Danlos Society.'

Dermatology (listed in alphabetical order):

Dr Nigel Burrows MD FRCP


Addenbrooke’s Hospital

Gastroenterology (listed in alphabetical order):

Professor Qasim Aziz

Professor of Neurogastroenterology

Gastrointestinal symptoms associated with HSD/EDS and PoTS (From age 16)

Clinics at The Royal London Hospital London and St Bartholomew's Hospital London

Hypnotherapy (listed in alphabetical order):

Kim Claydon Hypnotherapist (and hEDS/HSD Expert Patient)

Positive Solution Hypnotherapy

Hypnotherapy to help you cope better with hEDS/HSD related pain and even reduce it.

Massage Therapy (listed in alphabetical order):

Bristol Massage Therapy - Victoria Armstrong says: 'Like much of my continuous professional development, my introduction to this complex world of hypermobile conditions [and the benefits that massage therapy can provide to people suffering with a hypermobility syndrome] was through a client. A lady in her mid-20s, she has had symptomatic hypermobility syndrome all her life, and has become an expert on her symptoms...' 'Working with this client, I have learnt a lot about hypermobility syndrome and am incredibly grateful for her encouragement, guidance and patience whilst I have been growing as a practitioner.' ' turns out I don’t just have one client with some form of hypermobility, I have several.

Occupational therapy (listed in alphabetical order):

Abi Johnson 

Occupational Therapist,

Brentwood, Essex

Particular interests in coordination, handwriting and anxiety.



Jo Southall  Occupational Therapist and EDS Expert Patient.

Jo offers a range of services via video chat so you can reach her, as an OT, without the hassle of leaving your home - just 30 minute sessions via Skype or Google Hangouts. Discuss self-management strategies, devise flare-up plans and more. Jo offers a range of services to suit most budgets. Specialist areas are managing long-term conditions, rare disease advocacy, accessibility, travel, outdoors and creative activities.


Individual appointments start at just £20 per 30 minutes and include the following:

  • Freestyle Appointments - Not sure what you need? Come to me with a specific issue or two and we’ll work to find solutions. Perfect for vague feelings of I’m-sure-it-shouldn’t-be-this-hard. Leave the details to me.

  • Personal Shopping for Daily Living Aids - Aids and adaptations are available for a huge range of activities but the variety available can be overwhelming. Come to me with a list of your challenges and I will assess you and give you an itemised list of recommendations to suit your budget.

  • Corporate Consultation

  • Flare Up Planning

  • Joint Protection Masterclasses

  • Pacing Masterclasses

  • Personal Shopping for Daily Living Aids

  • Sleep Hygiene eClinic

  • Wellbeing in Practice mentoring


All of Jo's services are available worldwide excluding The USA & Canada.

Orthotics (listed in alphabetical order)

DM Orthotics (offer made to measure dynamic movement orthoses for those with EDS/HSD)

Osteopathy (listed in alphabetical order)

Abi Shrapnell, BSc

Osteopathic Medicine Osteopathy in connective tissue disorders, osteopathy in autonomic dysfunction

Newbury and Wokingham clinics

Essential Osteopathy


Glasgow, UK


Belinda Eyes

Chew Vally Osteopathic and Therapies Practice

01275 333587

Zac Laraman

Sports Osteopath

Gaerwen (North Wales)

Plympton Osteopathic Centre


Pain specialists (listed in alphabetical order)

Richmond Stace

Specialist Pain Physiotherapist & Pain Coach

London and Surrey, UK

Marie Wilson


Complex Pain Management Therapy, Australia
Chronic and Complex Pain

Linda Bluestein MD

Wisconsin Integrative Pain Specialists, USA

Parenting (listed in alphabetical order):

The Wheels on Mum

Danielle Broad -  EDS Expert Patient; parent; wheelchair user, journal content contributor and blogger

shares her parenting tips  - 'Making the parenting world work for us with a newborn, despite disability'.

Read: Newborn phase

Read: Parenting from my wheelchair.

Mothering Matters - assists women with EDS transitioning from work life to motherhood)

Rachel Fitz-Desorgher 

Midwife, infant feeding consultant, active birth teacher and parenting consultant.

Berkshire (UK)

Physiotherapy (listed in alphabetical order):

Alison Bartup Physiotherapy

Stockport, UK

0161 440 8970

Louise Cousins

Ash Physiotherapy and Sports Clinic Canterbury, Kent

Canterbury, UK

Friel (Lorraine) Physiotherapy 

Glasgow, UK

Private appointments at:

Nicole Gipps 

SV S[prts Therapy

Clinics in Loughton and Harlow (UK)

Robyn Hickmott


Applecross Physiotherapy, Australia

(clinical interest and expertise in hypermobility syndromes in children and adolescents)

Gavin Kelly

Orthopaedic Physiotherapy

Cowen House

North Somerset, UK

Andre Le Leu

Dr Patrick Kiely


St Georges Hospital, UK

Bsc(Physiology),BPHTY(Physiotherapy), BESS, EUSSER

Complex pain, Orthopedic Rehabilitation, Complex Instability (Upper Limb)

Clinics in London and St Albans

Catherine Nutt

Physiotherapist - Sports medicine, musculoskeletal outpatients

Central Health

The Royal Hospital, UK

Jason Parry

Physiotherapist (hypermobility and complex regional pain syndrome)


Chartered Physiotherapists and business partners, Louise Grant and Anna Higo (née Nelson) own Physiocure®, which operates out of Cookridge Hall Health & Fitness in Leeds, UK.  Anna and Louise attend Hypermobility and Ehlers-Danlos courses to update their knowledge on these conditions as they see a fair number of patients with these hEDS and HSD.  In addition, Karen, their pilates instructor has been on a specialist APPI course on how to help hypermobile individuals with pilates exercises. The information gathered has been desalinated to the rest of the Physiocure Team,   via in-service training, in order to the to share this knowledge. Anna's written summary article can be found by clicking here.

Jane Simmonds, DProf, MA, PGDip, BAppSc, BPE, MCSP, MACP, SFHEA Physiotherapy, Hypermobility, EDS, sports and performing arts injuries, chronic fatigue, pain

Platinum Medical Centre

Wellington Hospital, UK

Richmond Stace

Specialist Pain Physiotherapist & Pain Coach

London and Surrey, UK

Dawn Thundow

Body Sym

Ramsgate, UK

Wendy Wagner

Wendy 4 Therapy

Licensed Physical Therapist

Naperville IL  (USA)

Marie Wilson

Chronic and Complex Pain Management, Australia

Pilates (listed in alphabetical order):


Jeannie Di Bon Movement Therapy

Based in London (UK), Jeannie Di Bon offers specialist courses for hypermobility and low back pain plus Integral Movement Method classes for all abilities. Sessions are available in Wimbledon, SW London and Central London. 

Through her own personal experiences of living with EDS, in addition to working closely with clients with hypermobility and EDS, Jeannie has created an online course to help patients develop a strong, stable body in a healthy, safe way.

Jeannie's blog (including articles such as ' EDS and exercise - not the opposites you'd think'') can be found here.

Jeannies's talk 'Strengthening your hypermobile core with Pilates', presented at the Ehlers-Danlos Symposium in Ghent (2018), can be found by clicking here

Suzanne Martin

Pilates Instructor Trainer

Scoliosis, The Foot, Hypermobility, Assymetry 

Lameda, California, USA

Podiatry (listed in alphabetical order):

Dawn Shailer BScPod, MaDipSW


Hypermobility Syndromes, Aspergers, autism, epilepsy, Cerebral Palsy

Clinic in Eastboune, UK

The London Podiatry Centre UK

Advanced dedicated podiatric gait analysis facilities

Prolotherapy (listed in alphabetical order)

Caring Medical (USA)

Clinics in Illinois and Florida

Gloria Tucker, MD
Prolothera/Regnerative Therapy (HEDS/EDS)
California, USA

Ring Spints (listed in alphabetical order):

Ring splints by Zomile - create very affordable, contemporary, solid silver ring splints for those in need of finger and thumb stabilisation


Philip Bull 

Consultant Rheumatologist

One Healthcare

Kent, UK

Prof. Rodney Grahame and Prof. Ian Chikanza

The International Arthritis & Hypermobility Centre (IAHC) - Adults

The Harley Street Clinic

16 Devonshire Street,

London W1G 7AF. or contact The Practice Manager at or by telephone on +44(0)7444 101 381.

Prof. Rodney Grahame and Prof. Ian Chikanza

The International Arthritis & Hypermobility Centre (IAHC) - Children

The Harley Street Clinic

84 Harley Street,

London W1G 7HW. or contact The Practice Manager at or by telephone on +44(0)7444 101 381.

Alan Hakim MA FRCP  (currently on 12 months sabbatical)

Rheumatology, General Medicine

The London Hypermobility Unit, UK

Dr Hana Kazkaz

The Hypermobility Clinic, Department of Rheumatology

University College London, UK

Dr Patrick Kiely


St Georges Hospital, UK

Dr Peter Lanyon

Rheumatlogist Nottingham, UK

Dr Gayatri Mittal MD, PhD, MRCP


Clinics at Stanmore Hospital, Wellington Hospital, The London Clinic, UK


Sleep Clinics (listed in alphabetical order):

The Sleep Service (appointments by medical practitioner referral or 'Choose and Book' only)

Sleep apnoea, restless leg syndrome, snoring etc.,

Liverpool (UK)

Upright MRI Centre

Medserena Upright MRI Centre  

London, UK

Further lists of HSD/hEDS friendly health care professionals can be found from the sites below (listed in alphabetical order):

A list of health care professionals around the globe is available from the Ehlers Danlos Society:

A list of PoTS friendly health care professionals is available from PoTS UK:

A list hypermobility friendly health care professionals is available from the Hypermobility Syndromes Association:

Blogs (listed in alphabetical order):

Jeannie Di Bon

Jeannie Di Bon Movement Therapy

Hannah Ensor 

Stickman Communications

Jo Southall

JB Occupational Therapy  (JBOT)

Lucy Watts MBE

Lucy's Light

Claire Smith

Understanding hEDS and HSD

click here

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